Our foundation was founded by award winning inclusiveness and accessibility advocate Carion Fenn, recipient of The Ontario Volunteer Service Award, Spinal Cord Injury Ontario & University Health Networks Patty Dawson Award, Town of Ajax – Ajax Civic Award & Accessibility Award, and Abilities Awards - Advocacy Award. We provide support through our monthly Rare Disease Support Grou Meetings in partnership with Ajax Public Library. Educate and help find support through our Rare Disease Expo Supported by Town or Ajax, Mental Health Forum in partnership with Ajax Public Library, Flag Raisings and Proclamations.
Our goal is to support communities by teaming up with organizations like the Ajax Public Library as our support group meetings partner. Having our first annual Rare Disease Expo support by The Town of Ajax, having the Carion Fenn Award sponsored by Pickering Rotary Club, and having Exhibitors like Diabetes Associations,Von Canada, Lam Canada, Epilepsy Durham, Town of Ajax Diversity and Accessibiity Committee, Pickering Rotary Club, NF Ontario, Community Care Access Centres, Health First Family Chiropractic, Miranda Naturopathic Clinic, Abilities Centre. Some Rare Diseases or Disorders you may not think are Rare: Alzheimer, Arthritis, Autism, Cancer, Cerebral palsy, Cervical Dystonia, Dementia, Diabetes, and more. See our Rare Disease page for more details.
Partner & Sponsors:
Next: May 11, 2017 6:30pm Estern (From Dust till Dawn
Carion Fenn Foundation is a Registered Charity Established to Educate, Support and help find solutions for those affected Rare Diseases such as Syringomyelia (SM), Chiari Malformation (CM), EDS, Arthritis, Epilepsy, Sarcoidosis, LAM, Familial Ataxia and other Diseases or Disorders. There are over 7,000 known rare diseases or disorders and more than 50% of those affected are children. We strive to help those affected from suffering in silence without the help and support that they deserve.
Rare Disease & Disorders are NOT as RARE as you think. Some Rare Diseases & Disorders affecting our communities.
A list narrowed down to help simplify the understanding of what is a rare disease to allow the public to get a better understand of Rare Diseases & Disorders affecting our Communities.
Alzheimer Arthritis Autism
Bronchiolitis Burning mouth syndrome
Cancer Carpenter syndrome
Cerebral palsy Cervical dystonia
CHILD syndrome Chiari Malformation
Cholesterol Crohn's disease
Cystic fibrosis Deafness Dementia
EDS (Ehlers Danlos Syndrome) Epilepsy
Fibromyalgia Fraser syndrome
Gallbladder Glaucoma Headache
Heart disease Heart tumor Hepatitis
Hydrocephalus NF (Neurofibromatosis)
LAM (Lymphangioleiomyomatosis) Leukemia
Lupus nephritis Measles Meningitis
Mumps Paine syndrome Paraplegia
Parkinson Polio Q fever
Rabies Rubella Sarcoidosis
Sickle cell anemia Sjogren's Syndrome
Smallpox Spina bifida
Spinal cord neoplasm Syringobulbia
Whooping cough Yellow fever
List Narrowed down from Global Genes Rare List & Names given by those we provide support to.
October 10, 2017
6:30PM - 9PM
International Mental Health Day