This event allow us to increase awareness, come together while raising funds to support the work we do in helping Communities. We can't do this alone, its a team work in helping to make a difference, so join us in raising funds and celebrating Rare Disease Day February 28, 2017. Register at 

Everyone is welcome to join our event. Our event location is fully accessible. You can play as a player or form your own team for a cause or organization with up to 6 players.

Players            $ 20 Each
Team               $120

Most Pledges Collected
Best Bowler
Worse Bowler
Most Enthusiastic Bowler

You can collect donations of $1, $5 or any amount from your family, friends and coworkers. Contact us for the pledge forms. For more details, you can email us at

Carion Fenn Foundation

Bowl for rare diseases

Charity 802775791RR0001

syringomyelia, Chiari  Malformation & Rare Diseases

Carion Fenn Foundation would like to Invite you to join our 2nd Annual Bowl For Rare Disease Fundraising Event.

Next Bowling Event:February 28, 2017 6pm - 7:30pm
Locarion:Neb's Fun World 
1300 Wilson Road North, Oshawa ON L1K 2B8.

Take the challenge
Win A Prize 
Help Others 

Profits from this event goes to the Carion Fenn Foundation. Thanks for your support.
Disclaimer: Remember – we are NOT medical professionals and all views are based on personal experiences with Syringomyelia & Chiari Malformation – We are not doctors and we do not give medical advice. Always consult a qualified medical professional for medical care. We take no responsibility or liability; our terms of service apply. Through our support group meetings you will be able to be seen and heard! (Make sure you remember that people will be able to see you! Our support group meetings are recorded. By participating with our support group meetings, you are agreeing to our Terms of Service, you are acknowledging that you accept our terms, and give permission for us to use your picture, video, voice, image, or likeliness of our image or voice as required to advocate for our causes. You acknowledge that by participating in the support group meeting you are subjecting yourself to being recording, such recording is subject to be used, or shared as required to advocate for our causes. We take no responsibility, and accessing our support group meeting is at your own risk, and by using this service you are taking responsibility of your action, and cannot hold Carion Fenn Foundation, Carion Fenn or Syringomyelia & Chiari Network Liable. Do not use our services if you do not wish to be included in our recordings as we cannot edit any one person out of the meeting.

Our Partners & Supporters

Bowl For Rare Diseases (Last Day in February): 

The Carion Fenn Foundation organizes a Bowl For Rare Disease fundraiser annually. These fundraisers attract teams of various organizations that represent those with rare diseases and disorders and people from the community. The bowling fundraiser is always a success and various prizes are awarded to different categories of bowlers. All funds raised through this fundraiser go towards the monthly Rare Disease Support group held by the Carion Fenn Foundation.