Donate to our Registered Charity, Carion Fenn Foundation and help those affected by Syringomyelia, Chiari Malformation and Rare Diseases to live better and get the support they deserve. 50% of those affected are CHILDREN. Those affected may not have a cure but can learn to live better and take this journey together. There are many ways to contribute and help our community. 

Donations to the Carion Fenn Foundation allows us to keep our focus on patients and those affected by Syringomyelia, Chiari Malformation and Rare Diseases providing Education, Support and Solutions to navigate their disease or condition. Every donation matters. There are over 7000 known rare diseases or disorders and 50% of those affected are children. 

​Helping the Rare Disease and Disorder community is a community effort. It is imperative that we work together to help build a better community for all. It is likely that someone you know is, or will be affected by a Rare Disease or Disorder. Thus, we all have a stake in each other’s health and well-being. We cannot do this alone; we need your help and support. 

​Those who suffer from a Rare Disease or Disorder face astounding adversity, including “misdiagnoses, unnecessary surgeries, lack of treatment options and support, financial hardship, and early death”. 

Cheque by Mail to:​ Carion Fenn Foundation

27 Hornsell Circle Ajax ON L1T 0G5 Canada

Our Partners & Supporters


Ways to help us help others:

DONATE NOW (One Time Donation)

Monthly Giving

Email Transfer:

Bank of Montreal: 

Attend A Fundraising Event


FLIPGIVE (Buy Products Through this link from Walmart, Indigo, Under Armour, Old Navy and Hudson's Bay; a percentage of sales will go to our foundation.

*Note: Charity Receipts will be sent to Donations over $20 through Paypal, Email Transfer, mail in cheques, and bank deposits. Please ensure that you email us about your transaction and provide your address so that we can get you the Tax Receipt. 

syringomyelia, Chiari  Malformation & Rare Diseases

Charity 802775791RR0001