Education, Support & ​​​Resources for RARE Disease Management!

Charity #: 802775791RR0001

syringomyelia, Chiari  Malformation & Rare Diseases

Donate to our Registered Charity, Carion Fenn Foundation and help those affected by Syringomyelia, Chiari Malformation and Rare Diseases to live better and get the support they deserve. 50% of those affected are CHILDREN. Those affected may not have a cure but can learn to live better and take this journey together. There are many ways to contribute and help our community. 


Donations to the Carion Fenn Foundation allows us to keep our focus on patients and those affected by Syringomyelia, Chiari Malformation and Rare Diseases providing Education, Support and Solutions to navigate their disease or condition. Every donation matters. There are over 7000 known rare diseases or disorders and 50% of those affected are children. 

Cheque by Mail to:​ Carion Fenn Foundation

27 Hornsell Circle Ajax ON L1T 0G5 Canada

Ways to help us help others:

DONATE NOW (One Time Donation)

Monthly Giving

Email Transfer:

Bank of Montreal: 

Attend A Fundraising Event


FLIPGIVE (Buy Products Through this link from Walmart, Indigo, Under Armour, Old Navy and Hudson's Bay; a percentage of sales will go to our foundation.

*Note: Charity Receipts will be sent to Donations over $20 through Paypal, Email Transfer, mail in cheques, and bank deposits. Please ensure that you email us about your transaction and provide your address so that we can get you the Tax Receipt.