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Registered Charity # 802775791RR0001

Ron Fenn, is a Fire Protection Engineering Technology College Student. He's volunteered working with children and worked as an election officer with the Town of Ajax. 

My name is Beverly Holtzman, I have had LAM for 15 years and I love life. I just finished a 27 year Career with TD Bank Financial Group to take care of my health. I am ready to take the next step by getting ready for a double lung transplant at TGH. Lam is pretty rare only 2000 known in the world.

Ron Fenn, is a Fire Protection Engineering Technology College Student and worked as an election officer with the Town of Ajax in 2014. He recently volunteered with the Town of Ajax Fire Department as a part of his college program. He's certified to work with children and been volunteering in building the Carion Fenn Foundation for 11 years. Ron is the original co-founder of support for those affected by Syringomyelia, Chiari Malformation with Carion. He knows what its like as a family member watching a loved one affected and being affected by a rare disease. He's a past volunteer with the Town of Ajax. Ron is CPR certified and have his smartserve which he recently used in volunteering at the Pickering Ribfest which its profits goes to help charities and nonprofits. Ron is dedicated and work hard to help those affected by Rare Diseases and look forward to becoming a Fire Fighter. 

Ashley Henery

Youth Ambassador & Program Coordinator

Carion Fenn Foundation

Aghna Wasim

Mental Health

Program Coordinator

Ajax, ON Canada

Executive Team

Ron Fenn, Vice President & Co-Founder​ 

Ajax, ON Canada

Kajani is a wife and mother of two children. She graduated from Centennial College and received her certificate for Business Foundation and the Bookkeeping program. She is a volunteer at the YMCA Employment Centre as an Administrative Assistant and Agincourt Community Service Association as a Tax Preparer.  She was a Student Ambassador at Centennial College. She is a Parent Council Member at Albert Campbell C. I. She loves to share her knowledge and life experiences with her friends and co-workers. She is a member of our Executive Team as a Bookkeeper.

Ashley is a grade 11 honour roll student at Ajax High School. She enjoys spending time researching about medical advancements, volunteering and making a different in her community. She is an active volunteer with the Town of Ajax, Lakeridge Health, ESP Worship Centre and The Carion Fenn Foundation. She is an aspiring doctor and looking forward to becoming a Paediatrician. Through her passion for medicine and her personal experiences she has gain an understanding and need to be able to make an impact for those who need compassionate care. 

Carion Fenn is the President of the Carion Fenn Foundation and Host of Health 180 with Carion Fenn on Rogers TV Durham, an Award-Winning inclusiveness and accessibility patient advocate. Carion is a Member of Lakeridge Health Board of Trustees, Board Quality Committee & Co-Chair Ajax Pickering Hospital Community Panel. She is an Accessibility Advisor to Town of Ajax Council on the Accessibility Advisory Committee. She is honoured to be selected for 100 Accomplished Black Canadian Women 2018. Member of the Jamaican Canadian Association. 

Diane Bateman

Administrative Director

Oshawa, On Canada

Queensly is a recent graduate with her Bachelors Degree in Community Development, her Social Service Worker diploma as well as her Film Production diploma. As an active member with both Rogers TV Durham as a Television Crew Member and in the school board as an Educational Assistant, Queensly has a passion with helping and giving a voice to those who wish to be heard. Working in communications with the Carion Fenn Foundation, allows her to have another outlet to help with this goal.

Eithan, Vice President in training

Ajax, ON Canada

Aghna is a student at the University of Toronto Scarborough completing a Specialist with Co-op in Psychology. She is passionate about issues related to healthcare particularly mental health, chronic illnesses and neurodegenerative diseases; education; and community engagement. At school, she volunteers with UTSC Accessibility Services and is a research assistant at the Cant lab. In addition to her role at the Carion Fenn Foundation,  Aghna enjoys volunteering with Footprints 4 Autism, the South Asian Autism Awareness Centre and the Princess Margaret Cancer Centre. 

 

Carion Fenn​​, President​ & Founder

Ajax, ON Canada

Beverly Holtzman

Support Group Host

Toronto, ON Canada

The Carion Fenn Foundation Executive Team is responsible for working with our President to do the day to day operations of the foundation under the governance of the Board of Directors. 

Diane is a wife and mother of 4 children and recently became a first-time Grandmother. In 2014, after 6 years of looking for an answer to the pain she was suffering, she was finally diagnosed with Syringomyelia. For the Carion Fenn Foundation, Diane volunteers her time helping with our monthly support group meetings, is a member of our Executive Team, and works closely with the volunteers as Administrative Director. She also sits on the Board of Directors.  

Kajani Ravindradas

Bookkeeper

Toronto, ON Canada

Queensly Bude

Communications Coordinator

Oshawa, ON Canada

Eithan has been an Ambassador in building the Carion Fenn Foundation for 8 Years. He doesn't miss a flag raising we do. He's seen in pictures raising the Flag with Mayors of Town of Ajax and City Pickering. He plans on going to school to become a doctor to cure his mom, Carion. Eithan is the son of Carion Fenn, born following her diagnoses of Syringomyelia & Chiari Malformation. His birth made it in the medical Journal which is helping others. Eithan is a Competitive Gymnast at Acros Gymnastic Club and looking forward to competing Provincially. 


Through working with his mom and brother in advocating for others, Eithan has developed the passion for helping others. Eithan has a heart of cold and he's developed a passion for knowing when someone isn't doing too well. He often goes around town asking, are you ok? can I give you an hug. As you see his mom's compassion for others is apart of who Eithan is.