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Our Flag is raised in honour of creating awareness and celebrating our Syringomyelia, Chiari Malformation & Rare Disease Dates each year.
The Carion Fenn Foundation holds flag raising events to recognize Syringomyelia & Chiari Malformation Month and Rare Disease Day every year. Flag Raising is an important part of telling the community about our causes and help increase awareness. It gives us the platform to advocate in a way that will help make a difference.
Flag Raising (Rare Disease Day and Syringomyelia & Chiari Malformation Month): These flag raising events are organized in collaboration with the Mayor’s offices of various towns and cities. Those affected by rare diseases, members of the community and local leaders are invited out to the event to recognize Rare Disease Day.
Charity # 802775791RR0001
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