​International Mental Health Day

​Carion Fenn Foundation is a Registered Charity established to educate, support and provide resources for Rare Disease Management for Syringomyelia (SM), Chiari Malformation (CM), EDS, Arthritis, Epilepsy, Cancer, LAM, Autism, Fibro and other Diseases or Disorders. There are over 7,000 known rare diseases or disorders and more than 50% of those affected are children. We strive to help those affected from suffering in silence while educating the public. 

  • SARS                       
  • Scoliosis
  • Sickle cell anemia     
  • Sjogren's Syndrome
  • Alzheimer
  • Arthritis                    
  • Autism  
  • Bronchiolitis          
  • Cancer             
  • Diabetes  
  • Dystonia
  • EDS   
  • ​Epilepsy
  • Fibro          

Chiropractic & Naturopathic 


Our goal is to support communities by teaming up with organizations like the Ajax Public Library as our support group meetings and Mental Health Forum partner. Having our first annual Rare Disease Expo support by The Town of Ajax, having the Carion Fenn Award sponsored by Pickering Rotary Club, and having Exhibitors like Diabetes Associations, Von Canada, Lam Canada, Epilepsy Durham, Pickering Rotary Club, NF Ontario, Community Care Access Centres, Health First Family Chiropractic, Miranda Naturopathic Clinic and more. Some ​Rare Diseases or Disorders you may not think are Rare: Alzheimer, Arthritis, Autism, Cancer, Cerebral palsy, Cervical Dystonia, Dementia, Diabetes, and more. See our Rare Disease page for more details.​

Education, Support & ​​​Resources for RARE Disease Management!

syringomyelia, Chiari  Malformation & Rare Diseases

Some Rare Diseases & Disorders affecting our communities you may already know. 

  • Hepatitis
  • Polio                     
  • Q fever
  • Rabies       
  • Rubella               

​​​​JUNE 8, 2017 6:30PM

Our foundation was founded by award winning inclusiveness and accessibility advocate Carion Fenn, recipient of The Ontario Volunteer Service Award (10yrs), Spinal Cord Injury Ontario & University Health Networks Patty Dawson Award, Town of Ajax – Ajax Civic Award & Accessibility Award, and Abilities Awards - Advocacy Award.

​​​OCTOBER 10, 2017 5PM - 9PM

Charity #: 802775791RR0001

  • Fraser syndrome    
  • Gallbladder            
  • Glaucoma              
  • Headache
  • ​Heart disease​
  • Cholesterol            
  • Crohn's disease
  • ​​​​Cystic fibrosis 
  • Deafness                
  • Dementia
  • Carpenter syndrome​ ​
  • Cerebral palsy  
  • Cervical dystonia
  • CHILD syndrome   
  • Chiari Malformation