Education, Support & Resources for RARE Disease Management!
Charity #: 802775791RR0001
Petition to the Government of Canada and Members of Parliament:
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize the following dates Federally:
We are honoured to have the support of MP Mark Holland in helping our foundation to ask the Government of Canada and Members of Parliament to recognize Syringomyelia & Chiari Malformation Month September, and Rare Disease Day the last day in February Federally. We need your help as Canadian residents to ask our Government to recognize these important dates.
Too many suffer in silence with Syringomyleia, Chiari Malformation and other Rare Diseases or Disorders. These conditions may be visible or invisible and can affect every aspect of their lives requiring special accessiblity accommodations. Too many have nowhere to turn for help or support.
This is an opportunity for us as a community to help make a difference for so many Canadians.
How you can help:
We are hoping these will be recognized so that we can help further our causes and help make a difference for our Syringomyelia, Chiari Malformation, and Rare Disease Community.
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