​​​​​​​OCTOBER 10, 2017 5PM - 9PM

proclamation

Proclamation is an important part of telling the community about our causes and help increase awareness. It gives us the platform to advocate in a way that will help make a difference. We thank the Cities and Towns for their help and support. If you would like our help to get your City or Town to proclaim our dates, or if you would like to have a proclamation posted, please email smcm@carionfenn.org. We encourage everyone around the world to get these dates proclaimed, if you are successful, please let us know and send us a copy of the proclamation so that we can have it online for others to see around the world.

We have been fortunate with the support of many towns and cities Proclaiming:
July 17 and September as Syringomyelia & Chiari Malformation Day & Month. February 28 or 29 as Rare Disease Day. 


  • Town of AjaxSyringomyelia & Chiari Malformation day      July 17, 2013, 2014, 2015.
  • Town of Ajax: Rare Disease Day                                     February 29, 2016. 
  • The Town of Ajax recognition of September 2013, 2014, 2015 as Syringomyelia & Chiari Malformation month.
  • The Town of Fort Erie recognition of July 17, 2014 as Syringomyelia & Chiari Malformation day.
  • The Town of Fort Erie recognition of September 2014 as Syringomyelia & Chiari Malformation month.
  • The City of Markham recognition of July 17, 2014, 2015 as Syringomyelia & Chiari Malformation day.
  • The City of Markham recognition of September 2014, 2015 as Syringomyelia & Chiari Malformation month.
  • The City of Oshawa recognition of July 17, 2014 as Syringomyelia & Chiari Malformation day.
  • The City of Oshawa recognition of September 2014, 2015 as Syringomyelia and Chiari Malformation month.
  • The City of Pickering recognition of July 17, 2014, 2015 as Syringomyelia & Chiari Malformation day.
  • The City of Pickering recognition of September 2014, 2015 as Syringomyelia & Chiari Malformation month.
  • The City of Pickering recognition of February 29, 2016 as Rare Disease Day.
  • The City of Toronto recognition of September 30, 2013, July 17, 2014, September 30, 2015 as Syringomyelia & Chiari Malformation day.
  • The Town of Milton recognition of July 17, 2015 as Syringomyelia & Chiari Malformation day.
  • The Town of Milton recognition of September 2015 as Syringomyelia & Chiari Malformation month.


Proclamation (Rare Disease Day and Syringomyelia & Chiari Malformation Month)

Help us increase awareness, but requesting your City or Town to Proclaim Rare Disease Day and Syringomyelia & Chiari Malformation Month with our help. If you would like our help in doing this, please send us an email at smcm@carionfenn.org

Charity 802775791RR0001