We have been fortunate with the support of many towns and cities Proclaiming:
July 17 and September as Syringomyelia & Chiari Malformation Day & Month. February 28 or 29 as Rare Disease Day.
Charity # 802775791RR0001
Proclamation is an important part of telling the community about our causes and help increase awareness. It gives us the platform to advocate in a way that will help make a difference. We thank the Cities and Towns for their help and support. If you would like our help to get your City or Town to proclaim our dates, or if you would like to have a proclamation posted, please email email@example.com. We encourage everyone around the world to get these dates proclaimed, if you are successful, please let us know and send us a copy of the proclamation so that we can have it online for others to see around the world.
Proclamation (Rare Disease Day and Syringomyelia & Chiari Malformation Month)
Help us increase awareness, but requesting your City or Town to Proclaim Rare Disease Day and Syringomyelia & Chiari Malformation Month with our help. If you would like our help in doing this, please send us an email at firstname.lastname@example.org
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