Education, Support & Resources for RARE Disease Management!
Charity #: 802775791RR0001
What is Purple Day?March 26
Purple Day is an internationally recognized to increasing awareness about epilepsy worldwide. On March 26th annually, everyone is encouraged to wear purple in support of epilepsy awareness.
Aydin Leamen, Epilepsy Patient
Aydin Leamen was a very active and precocious 5 year old when he started displaying tick like movements. As time went on, they became more frequent, up to a 100 a day, and exaggerated. Aydin was diagnosed with Intractable Epilepsy and put on very strong medication. Initially he was unsure what was happening and resisted taking medication. The medication “changed” Aydin. He became angry, withdrawn, no longer interested in soccer or active sports. He seemed to lose his voice – confused and upset all the time questioning me “why me”. The initial medication made Aydin’s seizures worse culminating in a 13 minute seizure classified as Status epilepticus. His meds were once again changed with side effects that caused uncontrollable rage and behavioural outbursts. More medications and stays in hospital for EEG testing have yet to yield a solution for Aydin’s night time seizures. To help Aydin, Epilepsy Durham invited him to become an ambassador for Epilepsy. He suddenly felt a purpose and found his voice. Instead of letting Epilepsy control him, Aydin has chosen to control it through education and advocacy. On Purple Day 2016, Aydin, with his sister, presented a slide show with videos to all the children at Chris Hadfield PS on what Epilepsy is and how to treat those with Epilepsy. Since then they have been vocal advocates for Epilepsy online and at various events.
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