Education, Support & ​​​Resources for RARE Disease Management!

Charity #: 802775791RR0001

syringomyelia, Chiari  Malformation & Rare Diseases

Rare Disease Day February 28, 2017



  • February 28, 2017 6pm - 7:30pm Bowl 4 Rare Diseases. Carion Fenn Foundation would like to Invite you to join our 2nd Annual Bowl For Rare Disease Fundraising Event on February 28, 2017 6pm - 7:30pm at Neb's Fun World 1300 Wilson Road North, Oshawa ON L1K 2B8. 

We will have “The Next Star” finalist Brandon Bizior bowling and performing a song at our event. You can find more information at Brandon’s website: https://www.brandonbiziormusic.com/


  • Rare Disease Day Proclamation Ceremony (Town of Ajax) January 30, 2017: The Carion Fenn Foundation would like invite you to join us on January 30, 2017 at 7pm at the Town of Ajax Concil Chambers where Carion Fenn will received the Rare Disease Day Proclamation from Mayor Parish.

  • February 27, 2017 2pm: Flag Raising with Mayor Dave Ryan, City of Pickering.                        1 The Esplanade South Pickering, ON L1V 6K7
    CanadaThe Carion Fenn Foundation would like to invite you to join us on February 27, 2017 at 2:00 pm at the City of Pickering where Carion Fenn will receive the Rare Disease Day Proclamation and raise the foundation’s flag with Mayor Ryan. In recognition of rare disease day on February 28th, 2017. Our flag will be flown all day on rare disease day at the City of Pickering.

Rare Diseases are affecting our communities, its important for us to help make a different in educating, supporting and help those affected. This event allows us to increase awareness, come together while raising funds to support the work we do in helping Communities. We can't do this alone, its a team work in helping to make a difference, so join us in recognizing Rare Disease Day February 28, 2017. 

Rare Disease Day is recognized internationally. In support of those affected around the world. There are over 7,000 affected by a Rare Disease or Disorders and more than 50% those affected are children. We join in each year with our international friends in showing support for those affected by increasing awareness and recognizing this day. Please join in on our innitiatives because Together We Are Stronger.