Sujeepa Tharmalingam

Joe Dickson MPP Ajax Pickering
I was proud to present the Courage and Bravery award to Valerie Watier. Mayor Dave Ryan, City of Pickering. (Facebook).

Rare Patient Voice​

Thank you @carionfenn for putting on such a wonderful event! We were glad to meet so many great people from the community! (Twitter)

NF Ontario​

Thank you for hosting a great event! We were happy to be a part of the Rare Disease Health & Wellness Expo! (Twitter)

Simon Stones (Service User Researcher)

​It was great to watch the expo from across the pond - it looks like it was a huge success and I hope empowered other individuals living with rare diseases.

Helen R

I was very Happy to be there!!!  (Facebook)​

Daniel Fenwick, Brauti Thorning Zibarras LLP. 

I just wanted to say thank you and great job this Saturday. I was very pleased to be involved in such a  great community building event. I was able to discuss and meet with a whole bunch of different people in the community. Thanks again for involving me and if there is anything else you are doing or need assistance in the future be sure to let me know. 

Epilepsy Durham Region 

Thank you so much to you and all of those involved with the Rare Disease Expo on Saturday! We were delighted to be included (Twitter). 

I just wanted to Thank-You for hosting the 1st Annual Rare Disease Expo. You did an amazing job!! I came all the way from Puslinch to help represent NFON. I really enjoyed the expo, learned a lot of things and met some amazing people. I look forward to coming to next years event. Thanks again!! Helen

Dr. Sandra Miranda
Naturapathic Doctor

Charity #: 802775791RR0001

What They Say About The Expo!

Education, Support & ​​​Resources for RARE Disease Management!

Simon Stones​​
Service-User Researcher

Daniel Fenrick 
Personal Injury Lawyer

syringomyelia, Chiari  Malformation & Rare Diseases

Carion Fenn Foundation presents our first annual Rare Disease Expo supported by The Town of Ajax focusing on Health & Wellness for all. An inclusive Health Expo connecting and engaging communities to educate themselves about general health and wellness, Rare Diseases and Disorders such as: Syringomyelia, Chiari Malformation, EDS, Arthritis, Sarcoidosis, LAM and more through Entertainment, Workshops, Exhibitors, Ask the Expert Feature and much more. 

The Rare Disease Expo will encourage community support, offer information and solutions that will improve the quality of life and build inclusive, accessible neighborhoods, from navigating the health care system to improving access to medical professionals, and bringing our communities together.

​​​The First Annual Rare Disease Expo by Carion Fenn Foundation supported by The Town of Ajax on September 24, 2016 12pm - 4pm at Ajax Community Centre HMS Room (75 Centennial Road Ajax On L1S 4S4 Canada). 

Our event opened with greetings from Councilor Renwick Ashby on behalf of Town of Ajax Mayor Parish. Our workshops includes topics such as: How to deal with Insurance Companies with lawyer Daniel Fenwick, Dr. Miranda talking about Naturopathic Therapy and more. 

​Brandon Bizior, finalist on YTV show “The Next Star” performed his new single `In The Dark' and more. 

Mayor Dave Ryan, City of Pickering presented the Carion Fenn Award for Bravery & Courage.

Exhibitors: Rotary Club of Pickering, Rare Patient Voice, Sun Life Financial, Abilities Centre, Town of Ajax Accessibility and Diversity Advisory Committees, LAM Canada, Epilepsy Durham Region, Canadian Diabetes Association, Passion, Mathew Burns Pain Specialist, Health First Family Chiropractic, Miranda Naturopathic Clinic and more.

Ask the Expert panel featuring: Dr. Sandra Miranda (Naturopathic Doctor), Sujeepa Tharmalingam (Pharmacist), Simon Stones (Service-User Researcher), and Patient Experts Jeannie Tom, Janet Hussey and Merv Webb.

​FREE inclusive event OPEN TO THE PUBLIC with FOOD & PRIZES. 
Expo broadcasted live through Skype.
​Thank You!