Education, Support & ​​​Resources for RARE Disease Management!

Charity #: 802775791RR0001

syringomyelia, Chiari  Malformation & Rare Diseases

Frank Kennedy is a professional Social Worker & Counselor spans some 35 years in Mentoring and Counselor Supervisor. Frank is experience working in trauma, abuse, grief counselling, various forms of vistimization, family dynamics, child protection, conflict resolution, emotional regulation and marital is sues affecting a wide range of cultures and socio-economic classes. Kennedy's Intervention Services. 


Support Group Meeting Experts

Dr. Miranda, ND is one of Durham’s leading Naturopathic Doctors and founder of Miranda Naturopathic Clinic. She received her medical training and Doctorate in Naturopathic Medicine in the year 2000 from the Canadian College of Naturopathic Medicine. 

Abueng Naledi Bernard

Reiki Practioner 

My name is Abueng Naledi Bernard and I have been practicing Reiki since October 2014.  I'm based in Ajax, Ontario.

Simon Stones

Service-user researcher
​​Manchester, United Kingston​Website:
Twitter: @SimonRStones

Her passion for promoting wellness and integrative medicine inspires her patients to make positive changes in their lifestyles and nutrition to achieve optimal health. Dr. Miranda, ND provides a thorough approach to her evaluation and her treatment plans are very personalized. She enjoys working with families and being an essential part of their team of health care providers. Dr. Miranda, ND has a special interest and experience in treating hormonal imbalances, thyroid deficiencies, weight loss, detoxification, fatigue and stress management, digestive complaints, and pain management. In addition, she regularly contributes to Rogers TV as a natural health care expert.
She strives to create a professional, safe and nurturing environment at the clinic where practitioners and therapists can work together to find answers to their health concerns. Dr. Miranda, ND is pleased to be part of “Rare Disease Health & Wellness Expo”  and looks forward to meeting attendees during her workshop. 


Rare Disease Monthly Support Group Meeting

​in partnership with Ajax Public Library Support by Rotary Club of Ajax 

Our support group meetings are a unique way of providing support for those affected by Syringomyelia, Chiari Malformation and other Rare Diseases.Our support group meetings educate, support and help in attendance find solutions through our expert presentations and being able to ask questions. Attendees in the Library are entered into a draw to win a free treatment or consultation from each Expert Presenter. Our Experts are key in providing support, their time and valuable expertise to our community. 

Matthew Burns RMT, SIT, (C)CAMA, (D)CAPM is Pain Specialist [(D)CAPM] who empowers his patients to kick pain’s @$$… Matthew focuses on complicated chronic pain conditions and pain alike; providing passive care and detailed active strategies to empower patients to take pain care in their own hands. Matthew practices Registered Massage Therapy, Acupuncture, Kinesiology taping, Electromodalities and more. If you’re in pain please come talk to him!!! His knowledge and connections in the pain community will help you kick pain’s… you know what.

I became interested in metaphysics and spirituality in my early 30s and my path eventually lead me to Reiki. I did the Level I training and was amazed that I could already feel the energy.  I have since completed Level II and Level III and am now a Reiki Master in the Usui Shiki Ryoho style of Reiki.

I've had a bit of a winding journey, career wise.  I have a bachelor's degree in Computer Science and a certificate in Corporate Communications.  Before becoming a Reiki practitioner, I worked in IT, both here at home and overseas, and taught English for several years in Japan and South Korea.

Matthew Burns

Pain Specialist

Dr. Sandra Miranda, ND
Nuranda Naturapathic Clinic

​Simon Stones is a doctoral researcher in child and family health at the University of Leeds, where is research interests include self-management of long-term, chronic health conditions by children and their families, digital health tools and musculoskeletal health. He graduated from The University of Manchester with a first class BSc (Hons) in Biomedical Sciences with Industrial/Professional Experience in 2016. Simon is also a consumer health advocate and health activist, where he advises national research bodies in the UK on their paediatric and young adult rheumatology research agendas. In addition, he sits on numerous strategic and advisory panels for health and social care initiatives in the UK and Europe, including the development of mobile app technology to promote self-management and using multimedia platforms as an alternative to written participant information sheets for research. Simon has been invited to participate in a number of international conferences, and has co-authored a series of publications related to rheumatology and patient and public involvement in research. Furthermore, he is a member of the EULAR Young PARE working group and is a trustee of Fibromyalgia Action UK. His involvement in research has been inspired by his own experience of living with childhood-onset arthritis, fibromyalgia and inflammatory bowel disease.

Frank Kennedy


​Support Group Expert

KISI Intervention Counselling

On Canada

Support Group Meeting Experts