How to access support: 
1) Local - Ajax Public Library (Main Branch)

55 Harwood Avenue South

Ajax ON L1S 2H8 Canada 

2) Online (Skype): 

https://meet.lync.com/carionfennfoundation-carionfenn/cgf/79S3PK85 


3) Phone:  +1 (647) 749-7011  

Conference ID: 11871877

Find a local number: https://dialin.lync.com/carionfenn.org/smcm  

​​Our monthly support group meetings are topic based, and will help you meet others in similar situations, and gather information while supporting each other. The Carion Fenn Foundation & Ajax Public Library have partnered to educate and support those affected with rare diseases or disorders like Syringomyelia, EDS, Chiari Malformation and more. Presenter, Story Telling & Networking.

We open up the second portion of the group meeting for story telling & networking in order to allow members to get expert advice, get to know each other and to give everyone a chance to share their thoughts and communicate with others. This is a unique way to be a part of something special! We invite those with rare diseases / disorders, as well as family and friends who wish to learn more to join us at the Ajax Public Library, Skype or Call in. We recognize that our suppport group is helpful for the general public; so if you want to join in your welcome to. 
Please email smcm@carionfenn.org to get on our VIP list to keep you upto date.

October 12, 2017 6:30pm - 8:30pm


New Era of Treatments

Simon Stones, Service-user researcher


Lakeridge Health

Details coming soon!



​Too many suffer in silence with Syringomyelia, Chiari Malformation and other Rare Diseases with nowhere to turn for help or support. Don’t go through this alone! Join us for a place to share, learn, and support each other. There are over 7,000 known Rare Diseases / Disorders and more than 50% of those affected are children. 

syringomyelia, Chiari  Malformation & Rare Diseases

September 14, 2017 6:30pm - 8:30pm


3 Most Common Mistakes that keep you feeling tired and sick 

Dr. Sandra Miranda, Naturopathic Doctor

Miranda Naturopathic Clinic


Chiropractic Treatment

Dr. Mike Gauthier, Chiropractor

Ajax Family Chiropractic


November 9, 2017 6:30pm - 8:30pm


Cannabis

Kevin Hall, Executive Director

Chronic Pain Toronto


Naturopathic Treatment

Dhaya Intergrative Health



August 10, 2017 6:30pm - 8:30pm Eastern

​​Patient Empowerment Social Media & Homecare

Presenters: 

August 10, 2017 6:30pm - 8:30pm


Health Care Management  

Maureen McGowan

Community Education and Outreach Representative

Central East Local Health Integration Network (Central East LHIN)


Social Media Empowerment
Simon Stones, Service-user researcher

Maureen McGowan

Community Education and Outreach Representative

Central East Local Health Integration Network (Central East LHIN)  ​

Disclaimer: Remember – we are NOT medical professionals and all views are based on personal experiences with Syringomyelia, Chiari Malformation or other Rare Disease or Disorders – We are not doctors and we do not give medical advice. Always consult a qualified medical professional for medical care. We take no responsibility or liability; our terms of service apply. Through our support group meetings you will be able to be seen and heard! (Make sure you remember that people might be able to see you! Our support group meetings is subject to being recorded. By participating with our support group meetings, you are agreeing to our Terms of Service, you are acknowledging that you accept our terms, and give permission for us to use your picture, video, voice, image, or likeliness of our image or voice as required to advocate for our causes. You acknowledge that by participating in the support group meeting you are subjecting yourself to being recording, such recording is subject to be used, or shared as required to advocate for our causes. We take no responsibility, and accessing our support group meeting is at your own risk, and by using this service you are taking responsibility of your actions, and cannot hold Carion Fenn Foundation, Carion Fenn, Carion Fenn Foundation, its sponsors or partners Liable. Do not use our services if you do not wish to be included in our recordings as we cannot edit any one person out of the meeting.We respect, care about everyone, and do our best to help build a great community for all. 

December 14, 2017 6:30pm - 8:30pm


Frank Kennedy, Counselor 

Kennedy Intervention Services Inc.


Insurance for teh Hard-to-Insure

Irene Anyanwu

Simon Stones

Service-user researcher

Social Media Empowerment


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