Live Online Broadcast 

We hope that you can join us too in supporting each other. 

Syringomyelia, Chiari Malformation, Rare & Chronic Diseases Support Community. A place to share, learn & support each other worldwide.

​​Facebook Group with over 3,000 members, Fan page with over 800 members. Our Facebook pages connect you with others you can relate to and the pages are moderated by our Foundation team members.

Coming soon!

- Peer to Peering Mentoring

- Community Counselling 

Carion Fenn Network:

A virtual Global Community providing Online 24 Hour Support.

Carion Fenn Foundation provides various types of support Services: Monthly Support Group Meetings, Online 24 hours social network community and Facebook support for those affected by Syringomyelia, Chiari Malformation, Chronic Diseases and Rare Diseases. A place to share, learn & support each other. 

Monthly Support Group Meetings: 

3rd Year in partnership with Ajax Public Library

Location: Ajax Public Library (main branch or Skype)


​​Our monthly support group meetings are topic based, and will help you meet others in similar situations and gather information while supporting each other. The Carion Fenn Foundation & Ajax Public Library have partnered to educate and ​provide support. Now entering our 3rd year of partnership. We provided support for over 30 conditions, with patients and loved ones coming from GTA, Durham Region and upto 5 hours away. ​​

Our Heroes of Health: