Charity 802775791RR0001

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

together We Are stronger Campaign

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Become a Hero For Health... Champion... Warrior .. or Guardian...


​​Carion Fenn Foundation invites you to become a Hero for Health: Champion, Warrior, or Guardian. Help us educate, Support and provide resources for Chronic Disease Manage. Become a Hero Partner today. 


Over the years we have had the opportunity to help others and build meaningful relationships through the events and the programs we offer. Our corporate Partners plays a keys role in allowing us to grow, offer support, and help support communities. We have partnerships with the Ajax Public Library and received support from Town of Ajax, Rotary Club of Pickering, Rotary Club of Ajax, Ajax Legion and we need your help to continue our work in helping communities.


A charity receipt is available. 

Carion Fenn Foundation has programs in place to help communities such a monthly support group meeting in partnership with Ajax Public Library, events such as Health Expo (support by Town of Ajax) and Mental Health Forum (partnership with Ajax Public Library) with 24 hours online support and need funding to maintain, implement new ideas and support patients who are in deperate need of but we can't do it alone, we need your help to continue our work in helping others and implemeting new support and programs needed by community members. 

Volunteer
Give time: Volunteer - Join our team, advocate for change, increase awareness and help build our community. Help others, support events, become a leader or activist. Carion Fenn Foundation invite interested candidates to submit their application to join the CFF Board of Directors, Executive Team or Network Admin Team. We are interested in hearing from individuals who are interested in being a moderator, bloggers, welcoming angels and help to support others through our Social Network (Carion Fenn Network) and our Facebook Group and Fan page. The Carion Fenn Foundation invite interested candidates to submit their Resume to join our team at smcm@carionfenn.org

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Participate
We have several events that you can come out and show your support. Come out to an event such as our Flag Raising with Mayors in different Cities or Town’s. Attend one of our Fundraisers such as Bowl For Rare Diseases, Karaoke, Rare Disease Expo, Mental Health Forum or Join in one of our Support Group Meetings and learn about Rare Diseases and help support others affected.

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more. 

Airing on Rogers TV Durham Channel 10

Donations to the Carion Fenn Foundation allows us to keep our focus on patients providing Education, Support and Solutions to navigate their disease or condition. Every donation matters.

Carion Fenn Foundation is a Registered Charity established to promote health by advocating, supporting, and providing resources for chronic disease management. There are over 7,000 known rare diseases or disorders. More than 50% of those affected are children. We strive to help those who are affected, from suffering in silence, while educating the public and individuals suffering with Syringomyelia, Chiari Malformation, about rare diseases including EDS, Arthritis, Epilepsy, Cancer, Lam, Autism, NF and more.